Zebra
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Zebra Files 29) Hyperfixation- My Best Friend And Worst Enemy
The author discusses the challenges of hyperfixation related to ADHD and Autism, detailing its impact on their daily life and struggles with hypermobility syndrome. Despite learning to manage hyperfixation with maturity, they still find it difficult to detach from tasks. The narrative reflects on personal growth and coping strategies. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Uncategorized, Wealthcareadhd, advice, anthropology, audhd, Autism, autoethnography, communication, community, content warning, drag, family, Free, health, healthcare, help, hyperfixation, Hypermobility, journal, life, lifestyle, me too, Mental Health, neologism, no paywalls, outreach, overextended, overstretching, personal truth, perspective, Poetry, psychology, research, resources, self help, self improvement, sitting, social justice, sociology, struggle, study, surgery, survivor, therapy, toxicity, toxicity toolkit, trigger warning, Wealthcare, woman, yoga, youtube, Zebra -
Zebra Files 27) Boiling Chicken
The author reflects on the underrated value of boiled chicken, particularly in making flavorful chicken soup. Boiling is essential for creating a tasty outcome, likened to a necessary lifestyle change that may seem unpleasant initially. Trusting the process leads to rewarding results, turning boiled chicken into a beloved meal, “Chicken Carcass.” Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Uncategorized, Wealthcareadvice, air fried, air fryer, anthropology, autoethnography, boiling, boiling chicken, bones, carcass, chicken, chicken carcass, communication, community, content warning, diet, dinner, family, food, food prep, Free, health, healthcare, healthy food, help, journal, life, lifestyle, me too, Mental Health, no paywalls, outreach, personal truth, perspective, psychology, resources, self help, self improvement, sociology, struggle, survivor, therapy, trigger warning, Wealthcare, whole food, yummy, Zebra -
Zebra Files 26) The Power of a Shower
The post discusses the author’s personal journey through caffeine withdrawal, emphasizing the importance of self-care. They describe acknowledging their struggles, countering cravings, and nurturing themselves with nutritious food and meaningful conversations. The acronym “Please Master” highlights self-care’s role in emotional regulation, fostering healthier patterns, and promoting overall well-being. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Uncategorized, Wealthcareadvice, anthropology, autoethnography, choices, communication, community, content warning, dbt, diet, exercise, family, food, Free, health, healthcare, help, hygiene, journal, life, lifestyle, me too, Mental Health, no paywalls, nutrition, outreach, personal truth, perspective, please master, psychology, resources, self care, self help, self improvement, selfcare, shower, skin, sociology, struggle, support, survivor, teeth, therapy, trigger warning, Wealthcare, Zebra -
Zebra Files 26) Backwards is also Backwards
The author expresses the struggle of managing their health system challenges related to hypermobility, including denied medical referrals and insurance issues. Despite making progress, they are dealing with discouragement, caffeine withdrawal, and the pressure of adult responsibilities. They embrace their current difficulties while maintaining hope for future improvements. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Uncategorized, Wealthcareadvice, anthropology, autoethnography, communication, community, content warning, depression, ehlers danlos, family, fatigue, forward, Free, frustration, health, healthcare, help, hope, journal, life, lifestyle, me too, Medicine, Mental Health, motion, motivation, no paywalls, outreach, perseverence, personal truth, perspective, psychology, resources, self help, self improvement, sociology, spoon theory, spoons, struggle, struggle bus, survivor, therapy, toxic positivity, trigger warning, Wealthcare, Zebra -
Heartbreak and Hoofbeats
Heartbreak and Hoofbeats by Protyus A. Gendher Heartbreak and HoofbeatsProfessionals are trained to unsee me Even when they’re looking for things unseen They can’t or won’t or don’t look deep Even when I spread it all out before their eyes Tying pieces together like an episode of CSI Flimsy red string connecting the bits of the puzzle But they listen like Continue reading
advice, ally, anthropology, art, autoethnography, bi, closet, communication, community, content warning, dazzle, EDS, ehlers danlos, family, feminism, Free, gay, genderr, health, help, hypermobile, journal, lesbian, lgbt, lgbtq, life, me too, Mental Health, no paywalls, outreach, personal truth, perspective, Poetry, pride, psychology, resources, self help, self improvement, silence, sociology, struggle, survivor, therapy, trans, trigger warning, writing, Zebra -
Zebra Files 24) Settling In
On day two of a lifestyle change, the writer confronts strong cravings and the challenge of balancing allowable, appealing, and easy-to-prepare foods. While struggling with discomfort, they acknowledge that improvement feels minimal, focusing instead on reducing misery. Acceptance of this ongoing journey becomes crucial for long-term success. Continue reading
Ehlers Danlos Syndrome, food addiction, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Social Issues, Uncategorized, Wealthcareadvice, back-pain, changes, chronic illness, chronic pain, communication, community, content warning, diet, disability, EDS, Ehlers Danlos Syndrome, failure, family, Free, health, help, journal, life, lifestyle, lower back pain, me too, misery, no paywalls, outreach, pain, personal truth, perspective, resources, self, self help, self improvement, settling in, struggle, success, survivor, therapy, trigger warning, Zebra -
Zebra Files 22) Napping is weird
The author struggles with the concept of napping, favoring productivity over rest, yet acknowledges its necessity due to back pain from hypermobility syndrome. Despite scheduling daily naps, they find them unappealing and disruptive. They reflect on the conflict between personal preferences and health needs, recognizing the importance of prioritizing well-being over strong feelings. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Uncategorized, Wealthcareadvice, back, back-pain, behavior, capitalism, communication, community, content warning, family, feelings, Free, health, help, journal, labor, life, lifestyle, me too, napping, naps, no paywalls, outreach, personal truth, perspective, productivity, resources, rest, self help, self improvement, sleep, struggle, survivor, therapy, trigger warning, weight, worth, Zebra -
Zebra Files 20) A Disastrous Goodbye
The author reflects on saying farewell to foods that cause discomfort, particularly stuffed Anaheims. Despite their deliciousness, the preparation proves painfully labor-intensive and leads to negative physical reactions. This experience reinforces the author’s commitment to managing their diet, acknowledging that while tempting, many foods are ultimately unsuitable for their body. Continue reading
advice, anaheims, capsaisin, communication, community, content warning, diet, EDS, Ehlers Danlos Syndrome, family, food, food sensitivities, Free, health, help, journal, life, lifestyle, mcas, me too, no paywalls, no safe foods, outreach, peppers, personal truth, perspective, resources, safe foods, self help, self improvement, struggle, survivor, therapy, trigger warning, yummy, Zebra -
Zebra Files 21) Prep Is a Four-Letter Word Meaning “Work”
The author shares their journey of implementing lifestyle and meal planning changes, acknowledging the challenges faced due to physical limitations. They emphasize the importance of preparation and adaptability while discussing their weekly meal plan, focusing on easy, repetitive recipes. The author hopes their experiences will inspire others without imposing judgments. Continue reading
Ehlers Danlos Syndrome, food addiction, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Uncategorized, Wealthcareadvice, anthropology, autoethnography, communication, community, content warning, diet, exercise, family, Free, health, healthcare, help, hypermobility syndrome, journal, life, me too, Mental Health, no paywalls, outreach, personal truth, perspective, psychology, resources, self help, self improvement, sociology, struggle, survivor, therapy, trigger warning, Wealthcare, Zebra -
Zebra Files 19) The Symptoms
The author shares a comprehensive list of their various health symptoms and diagnoses, including ADHD, autism, arthritis, and chronic pain. They aim to track their health changes as they interact with specialists and emphasize that the list serves as a reference. Many symptoms are severe and include issues like fatigue and digestive sensitivities. Continue reading
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Zebra Files 17) Trying To Hit A Moving Target
The writer compares managing health challenges to eating a whole elephant, emphasizing ongoing struggles with pain, medical tests, and difficult lifestyle choices. They face guilt over limitations and are exploring dietary changes to alleviate symptoms. Despite setbacks, they remain committed to seeking treatment and improving their well-being while acknowledging the complexities involved. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Social Issues, Uncategorized, Wealthcareadvice, anthropology, autoethnography, care, choices, communication, community, content warning, diet, Doctors, drugs, EDS, ehlers danlos, Ehlers Danlos Syndrome, family, Free, health, healthcare, help, journal, labs, life, lifestyle, me too, Medicine, meds, Mental Health, moving target, mri, no paywalls, normal, outreach, personal truth, perspective, psychology, resources, results, self help, self improvement, sociology, struggle, survivor, symptoms, target, tests, therapy, trigger warning, Wealthcare, Zebra -
Zebra Files 15) Meaningless Answers
The author shares their ongoing struggle with persistent symptoms despite normal MRI results, ruling out MS and a CSF leak. They face severe pain, mobility issues, and insurance challenges for necessary physical therapy. A reduction in work hours raises financial concerns, while waiting for further medical evaluations adds to their anxiety. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Social Issues, Uncategorized, Wealthcareabnormal, advice, anthropology, autoethnography, communication, community, content warning, CSF Leak, EDS, ehlers danlos, Ehlers Danlos Syndrome, family, Free, health, healthcare, help, journal, labs, life, lifestyle, me too, Medicine, Mental Health, mri, multiple sclerosis, no paywalls, normal, outreach, personal truth, perspective, psychology, resources, self help, self improvement, sociology, struggle, survivor, testing, tests, therapy, trigger warning, Wealthcare, your labs are fine, Zebra -
Zebra Files 14) Schrodinger’s Brain
The author explores the complex nature of illness and self-doubt through the metaphor of Schrodinger’s brain, likening their symptoms to being simultaneously real and unreal. This internal struggle involves battling a critical inner voice, “Joyce,” and the challenge of seeking validation amidst fluctuating health. The journey highlights the quest for real answers and relief. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Social Issues, Uncategorized, Wealthcareadvice, anthropology, autoethnography, body, communication, community, content warning, EDS, Ehlers Danlos Syndrome, family, Free, headaches, health, healthcare, help, journal, life, lifestyle, me too, Medical, Medicine, Mental Health, multiple sclerosis, neuropathy, no paywalls, outreach, pain, personal truth, perspective, psychology, regimen, resources, schrodinger, self help, self improvement, sociology, struggle, survivor, symptoms, therapy, trigger warning, Wealthcare, Zebra -
Zebra Files 13) Why Blog About It?
The author blogs about their medical journey for three main reasons: to process and analyze experiences, to create a searchable record of symptoms and illness progression, and to emphasize the importance of representation and visibility for shared experiences. Blogging fosters community and encourages open conversations about health struggles. Continue reading
cycle breaking, Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Social Issues, Uncategorized, Wealthcareadvice, anthropology, autoethnography, blog, communication, community, content warning, conversation, EDS, family, Free, health, healthcare, help, hoofbeats, Invisible, journal, life, lifestyle, me too, Medicine, Mental Health, narrative, no paywalls, outreach, personal truth, perspective, protyusagendher, psychology, records, representation, resources, script theory, self help, self improvement, social change, sociology, speaking up, struggle, survivor, therapy, trigger warning, visibility, Wealthcare, Zebra -
Zebra Files 12) Bracing for the Week Ahead
The author expresses anxiety about upcoming changes at work, including requesting accommodations while facing performance evaluations. They feel disposable and fear job insecurity. Additionally, they are frustrated with their medical care regarding scoliosis and the need for imaging. Amid personal challenges, they strive to manage their responsibilities while seeking answers about their health. Continue reading
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