Hypermobility
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Zebra Files 31) Physical Therapy
The author shares their experiences with physical therapy, highlighting the challenges and discomfort encountered while addressing hip, back, and shoulder issues. Despite initial soreness and excitement about progress, they face setbacks including increased shoulder pain and joint issues. The journey emphasizes the complexity of rehabilitation and the importance of careful exercise management. Continue reading
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Zebra Files 29) Hyperfixation- My Best Friend And Worst Enemy
The author discusses the challenges of hyperfixation related to ADHD and Autism, detailing its impact on their daily life and struggles with hypermobility syndrome. Despite learning to manage hyperfixation with maturity, they still find it difficult to detach from tasks. The narrative reflects on personal growth and coping strategies. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Uncategorized, Wealthcareadhd, advice, anthropology, audhd, Autism, autoethnography, communication, community, content warning, drag, family, Free, health, healthcare, help, hyperfixation, Hypermobility, journal, life, lifestyle, me too, Mental Health, neologism, no paywalls, outreach, overextended, overstretching, personal truth, perspective, Poetry, psychology, research, resources, self help, self improvement, sitting, social justice, sociology, struggle, study, surgery, survivor, therapy, toxicity, toxicity toolkit, trigger warning, Wealthcare, woman, yoga, youtube, Zebra -
Zebra Files 7) Did Not See This Coming
The visit to Dr. Handjob revealed mixed news regarding health concerns. While he initially ruled out a CSF leak, he suggested other possible diagnoses: Ehlers Danlos Syndrome, Cerebral Spinal Fluid Leak, and Multiple Sclerosis. Diagnostic tests will clarify the situation, leaving uncertainty about the outcomes but maintaining a sense of humor. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Uncategorized, Wealthcareadvice, anthropology, autoethnography, communication, community, content warning, CSF Leak, diagnosis, EDS, ehlers danlos, family, Free, health, healthcare, help, Hypermobility, I am not okay, journal, life, me too, medical tests, Medicine, Mental Health, ms, multiple sclerosis, no paywalls, outreach, personal truth, perspective, psychology, resources, scary, self help, self improvement, sociology, strange, strange symptoms, struggle, survivor, symptoms, tests, therapy, trigger warning, Wealthcare, Zebra -
Zebra Files 2) One Bite at a Time…
The blog discusses the author’s journey of managing hypermobility syndrome through diet and lifestyle changes, likening the process to “eating an elephant” one bite at a time. It reflects on past dietary experiences, the challenges of living with restrictions, and the support from family and work, emphasizing self-discovery and gradual improvement. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Uncategorized, Wealthcareaccess, advice, anthropology, autoethnography, barriers, care, chronic illness, chronic pain, communication, community, content warning, Diagnoses, diet, disability, EDS, ehlers danlos, family, food, Free, health, healthcare, help, hyperextension, Hypermobility, journal, life, lifestyle, Mental Health, no paywalls, nutrition, outreach, personal truth, perspective, psychology, resources, self help, self improvement, sociology, struggle, survivor, therapy, trigger warning, Wealthcare, weight-loss, Zebra -
Zebra Files 1) Zebras Exist
The author reflects on their long struggle with undiagnosed health issues, leading to a recent diagnosis of Hypermobility Syndrome. After years of unrecognized symptoms and pain, they acknowledge the role social media played in self-discovery. They seek validation and connection, emphasizing the importance of recognizing and sharing their journey as a “Zebra.” Continue reading
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