Medicine
-
1) Stronger Than My Collagen
The author, a 45-year-old disabled individual, shares personal experiences and revelations from navigating life with rare disorders. They aim to explore themes of intersectionality, trauma, and societal issues through writing. Committed to giving voice to the silenced, the author emphasizes the importance of sharing stories and addressing triggering topics candidly. Continue reading
adhd, advice, America, anthropology, anxiety, Autism, autoethnography, communication, community, content warning, cult of the ego, Diagnoses, ehlers, ethnography, family, Free, gender, healing, health, healthcare, help, homelessness, housing, journal, journaling, journey, klinefelters, life, me too, Medicine, Mental Health, narrative, no paywalls, outreach, participant observation, personal, personal truth, perspective, politics, psychology, ptsd, race, Rare Diagnoses, resources, science, self help, self improvement, social science, sociology, struggle, survival, survivor, therapy, trauma, trigger warning, turners, Wealthcare, writer, writing, Zebra -
Survivor Literacy
Survivor Literacy I’ve really struggled, since the inception of this blog, to find an adequate umbrella title. I didn’t want it to be disjointed, or all over the place. I wanted to clearly document the medical journey of an outcast. That alone, is an overwhelmingly large topic. But it’s not alone. My medical journey is… Continue reading
-
AIQ – The Ethics of Tyranny
The discussion delves into the ethical tensions faced by various professions under the Trump administration, highlighting systemic pressure that forces conflict between professional ethics and political directives. It emphasizes resistance by legal, medical, educational, and military sectors rather than alignment with administration policies, showcasing a struggle for integrity amid coercive governance. Continue reading
-
Zebra files 46) Treatment Follow Up
The author provides an update on their experience with hyaluronic acid knee injections. After the third round, they report significant pain relief and improved mobility, particularly in relation to their hips. While pain persists, the injections have eased daily activities and reduced overall discomfort. They express gratitude for support during the treatment process. Continue reading
advice, communication, community, content warning, EDS, ehlers danlos, Ehlers Danlos Syndrome, family, Free, health, help, journal, life, lifestyle, me too, Medicine, no paywalls, outreach, personal truth, perspective, resources, self help, self improvement, struggle, survivor, therapy, trigger warning, Zebra -
Zebra Files 45) Treatment Review- Lumbar Nerve Ablation
The author shares their painful experience with lumbar nerve ablation, detailing the diagnostic rounds and procedures. After two painful rounds of injections with minimal relief, the author concluded the diagnostic tests were unsuccessful. They are now considering a spinal cord stimulator, but express fear and skepticism about further pain management options. Continue reading
acupuncture, advice, back-pain, communication, community, content warning, EDS, Ehlers Danlos Syndrome, family, Free, health, help, journal, life, lifestyle, me too, Medicine, nerve ablation, no paywalls, outreach, pain, pain treatment, personal truth, perspective, resources, sciatica, self help, self improvement, struggle, survivor, therapy, trigger warning, Zebra -
Zebra Files 44) Treatment Review-Hyaluronic Acid
The author discusses their experience with Hyaluronic Acid injections for knee pain relief due to the ineligibility for steroid and stem cell treatments. Despite the painful procedure, initial results show significant improvement in pain levels and knee functionality. The injections, required every 3-6 months, are covered by Medicaid, offering a hopeful solution. Continue reading
advice, chronic pain, communication, community, content warning, EDS, ehlers danlos, Ehlers Danlos Syndrome, family, Free, health, help, hyaluronic acid, injections, journal, knee, knee pain, life, me too, Medicine, no paywalls, outreach, pain, pain clinic, personal truth, perspective, resources, self help, self improvement, struggle, survivor, therapy, treatment, trigger warning, Zebra -
Zebra Files 42) Assessment
The author describes their journey of seeking formal assessments for Autism and ADHD due to exhibiting related traits without a diagnosis. Despite multiple attempts including consultations with doctors and a mental health group, they face barriers in accessing evaluations, ultimately frustrated but determined to continue pursuing diagnosis options. Continue reading
adhd, advice, anthropology, Autism, autoethnography, barriers to care, communication, community, content warning, EDS, family, Free, health, help, journal, life, me too, Medicine, Mental Health, no paywalls, outreach, personal truth, perspective, psychology, resources, self help, self improvement, sociology, struggle, survivor, therapy, trigger warning, Zebra -
Zebra Files 39) Nope
The author shares their struggles with a physical therapy program, experiencing pain and setbacks despite effort. They emphasize the difficulty of radical acceptance and the societal pressures surrounding therapy. The post includes resources for others facing similar challenges, highlighting the need for understanding and support in managing chronic pain. Continue reading
acceptance, advice, communication, community, content warning, depression, EDS, family, Free, health, help, journal, life, lifestyle, me too, Medicine, Mental Health, no paywalls, outreach, personal truth, perspective, physical therapy, Radical Acceptance, resources, self help, self improvement, struggle, survivor, therapy, trigger warning, writing, Zebra -
Zebra Files 36) It’s All Connected
The author expresses frustration with the interconnectedness of insurance systems after losing coverage, preventing access to necessary medications and treatments. Facing bureaucratic obstacles, they question the impact of their work hours on pain levels and quality of life while navigating the intimidating process of submitting disability paperwork. Resilience is tested amid these challenges. Continue reading
-
Zebra Files 35) Pain Group
The author attended a Pain Support Group for the first time, prompted by feelings of mild suicidality, depression, and anxiety. While reflecting on their struggles, they shared emotions and experiences with others, finding some usefulness in the conversation. Although physically exhausting, they’re open to the potential benefits of the group. Continue reading
advice, chronic pain, communication, community, content warning, EDS, ehlers danlos, Ehlers Danlos Syndrome, family, Free, gaslighting, group therapy, health, help, journal, life, lifestyle, me too, medical gaslighting, Medicine, Mental Health, no paywalls, outreach, personal truth, perspective, resources, self help, self improvement, struggle, support, survivor, therapy, trigger warning, waste of time, Zebra -
Zebra Files 32) Getting My Butt Kicked By Everything
The author reflects on their challenges managing physical pain and limitations, particularly during physical therapy. Despite planning and efforts, they struggle with pain that affects their work and daily activities. Yet, they experience moments of improvement and hope. Upcoming dental surgery and participation in a pain support group offer potential paths forward. Continue reading
advice, chronic pain, communication, community, content warning, EDS, Ehlers Danlos Syndrome, family, fitness, Free, health, help, journal, life, lifestyle, me too, Medicine, Mental Health, no paywalls, outreach, personal truth, perspective, PT Physical Therapy, resources, self help, self improvement, struggle, survivor, therapy, trigger warning, Zebra -
Zebra Files 30) Failing At Everything, Everywhere, All At Once
The author shares a challenging life update, highlighting difficulties in managing health amidst a supportive family and job. Despite attempts to follow a strict diet and start physical therapy, pain persists, complicating daily life and work. Financial strains from insurance issues and personal struggles exacerbate feelings of inadequacy and overwhelm. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Social Issues, Uncategorized, Wealthcareadvice, boddy, capitalism, communication, community, conspiracy, content warning, diet, dietary needs, EDS, failing, failiure, family, Free, health, help, insurance, insurance companies, journal, life, me too, Medicine, no paywalls, outreach, overextended, overtaxed, overwhelmed, personal truth, perspective, planning, resources, self help, self improvement, special diet, struggle, support, survivor, therapy, trigger warning, Zebra -
Zebra Files 26) Backwards is also Backwards
The author expresses the struggle of managing their health system challenges related to hypermobility, including denied medical referrals and insurance issues. Despite making progress, they are dealing with discouragement, caffeine withdrawal, and the pressure of adult responsibilities. They embrace their current difficulties while maintaining hope for future improvements. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Uncategorized, Wealthcareadvice, anthropology, autoethnography, communication, community, content warning, depression, ehlers danlos, family, fatigue, forward, Free, frustration, health, healthcare, help, hope, journal, life, lifestyle, me too, Medicine, Mental Health, motion, motivation, no paywalls, outreach, perseverence, personal truth, perspective, psychology, resources, self help, self improvement, sociology, spoon theory, spoons, struggle, struggle bus, survivor, therapy, toxic positivity, trigger warning, Wealthcare, Zebra -
Zebra Files 19) The Symptoms
The author shares a comprehensive list of their various health symptoms and diagnoses, including ADHD, autism, arthritis, and chronic pain. They aim to track their health changes as they interact with specialists and emphasize that the list serves as a reference. Many symptoms are severe and include issues like fatigue and digestive sensitivities. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Uncategorized, Wealthcareadhd, advice, allergy, ankle pain, anxiety, appointments, arm pain, arthritis, asthma, Autism, back-pain, birth control, blood, blood tests, body, bowels, breathing, bruising, carpel, carpel tunnel, chronic illness, chronic pain, clicking, cold sensitive, communication, community, comorbidities, content warning, control, dairy, dazzle, degenerative, degenerative disc, depo, Diagnoses, diet, Doctors, dyes, edema, EDS, Ehlers Danlos Syndrome, electrical, family, fatigue, foot pain, Free, frequent urination, global joint laxity, gluten, grinding, grip, hand pain, health, hearing, heartbeat, heartrate, heat intolerance, help, hip pain, hypermobile, ibs, ibsc, iud, joint, joint laxity, joints, journal, knee pain, labs, latex, latex allergy, laxity, leg pain, life, lifestyle, low carb, low fat, lower back, mcas, me too, Medical, Medicine, Mental Health, metabolic syndrome, morbidly obese, muscle spasms, neck pain, neuropathy, no paywalls, nonbinary, novaring, numb, obese, obesity, outreach, overweight, pain, peppers, personal truth, perspective, pins and needles, popping, preservatives, reference, resources, safety, sciatica, scoliosis, self help, self improvement, shoulder pain, special diet, specialists, stabbing, struggle, survivor, sweeteners, swelling, symptoms, therapy, tingling, trans, transgender, trigger warning, tummy, tummy ache, varicose veins, vibrating, vision, Wellness, wrist pain, xray, Zebra -
Zebra Files 18) Understanding Where I’m Coming From
The author shares poetry reflecting on personal health struggles, including mental health, ADHD, and obesity. The poem describes a transformative experience with mental anguish, contemplating death before choosing life. The semicolon symbolizes resilience, representing a continuation of the author’s story despite hardships. The work emphasizes overcoming despair and embracing a renewed existence. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Social Issues, Uncategorized, Wealthcareadvice, anthropology, autoethnography, communication, community, content warning, cry for help, family, Free, health, healthcare, help, journal, life, lifestyle, me too, Medicine, Mental Health, no paywalls, outreach, personal truth, perspective, Poetry, protyusagendher, psychology, resources, self help, self improvement, semicolon, sociology, struggle, suicidality, suicide, survivor, therapy, trapped, trigger warning, Wealthcare
Recent Posts
- Episkevology – PROBLEM CHILD
The content discusses “Episkevology,” highlighting the systemic and individual factors contributing to the notion of “problem children.” It examines parenting styles, children’s behaviors as signals of underlying issues, and the importance of co-regulation. Ultimately, it advocates for a new paradigm that reframes children as co-researchers rather than problems. - 84) Matthew
The post reflects on the impact of Matthew Shepard’s murder on the author, who feels deeply connected to their identity as a bisexual witch in Wyoming. It highlights the pervasive bigotry encountered, despite some community members claiming to support “live and let live.” The author expresses determination to fight for equality and honor Matthew’s legacy, feeling an obligation to remain visible and vocal against hatred. - AIQ- Human Pets
Human Pets Do oligarchs keep human pets? That’s a provocative question, Protyus—and it taps into a deeper critique of power,… Read more: AIQ- Human Pets - THE SAD INTERSECTION
Two different “SADs” share the same biological crossroads: • SAD = Seasonal Affective Disorder• SAD = Standard American Diet They… Read more: THE SAD INTERSECTION - THE SILENT TETHER OF ILLEGITIMACY
We begin with reverence. Before we speak of illegitimacy, we honor the histories that were already under assault: We do… Read more: THE SILENT TETHER OF ILLEGITIMACY - BASTARDS: BORNE OF A BROKEN CONTRACT
We begin with reverence. Before we speak of bastards, we honor the histories that were already under assault: We do… Read more: BASTARDS: BORNE OF A BROKEN CONTRACT - The Survivor Literacy Disconnect: Seeing What Others Are Trained Not To See
Survivor Literacy begins with a simple, destabilizing truth: Some people are trained to ignore reality.Survivors are trained by life to… Read more: The Survivor Literacy Disconnect: Seeing What Others Are Trained Not To See - The Profit Logic – When a System Rewards Illness More Than Health
When a System Rewards Illness More Than Health Modern American health outcomes cannot be understood without examining the incentive structures… Read more: The Profit Logic – When a System Rewards Illness More Than Health - How Government Priorities Lock the Blender Into Place
How Government Priorities Lock the Blender Into Place When the loss of intergenerational transmission, the rise of ultra‑processed foods, and… Read more: How Government Priorities Lock the Blender Into Place - When Loss of Transmission, Ultra‑Processed Foods, and the Modern Economy Converge
The Three‑Part Blender That Reshaped the American Body and Household The forces reshaping American life are often discussed separately: the… Read more: When Loss of Transmission, Ultra‑Processed Foods, and the Modern Economy Converge - The Collapse of Household Knowledge
Food Skills Were Only the First to Fall The loss of food literacy is not an isolated phenomenon. It is… Read more: The Collapse of Household Knowledge - Collapse of the Extraction Stack – How Policy, Economics, and Labor Restructured the Household and Erased Generational Skills
How Policy, Economics, and Labor Restructured the Household and Erased Generational Skills The Extraction Stack is the layered system that… Read more: Collapse of the Extraction Stack – How Policy, Economics, and Labor Restructured the Household and Erased Generational Skills - Collapse of the Extraction Stack – Labor, Policy, Economics, Skill Transmission, and Health
Labor, Policy, Economics, Skill Transmission, and Health The Extraction Stack is the layered system that demanded more than any one… Read more: Collapse of the Extraction Stack – Labor, Policy, Economics, Skill Transmission, and Health - Collapse of the Extraction Stack – Health, Food, and Biology
(Integrated with Health, Cooking, and the Biological Impact) The Extraction Stack is the layered system that demanded more than any… Read more: Collapse of the Extraction Stack – Health, Food, and Biology - Juneteenth, the Hostage‑Pledge System, and the Dismantling of Black Excellence
A national reckoning: nobody is free until everybody is free. Juneteenth is not just a celebration of emancipation.It is a… Read more: Juneteenth, the Hostage‑Pledge System, and the Dismantling of Black Excellence
Newsletter
Make a one-time donation
Make a monthly donation
Choose an amount
Or enter a custom amount
Your contribution is appreciated.
Your contribution is appreciated.