tests
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Zebra Files 17) Trying To Hit A Moving Target
The writer compares managing health challenges to eating a whole elephant, emphasizing ongoing struggles with pain, medical tests, and difficult lifestyle choices. They face guilt over limitations and are exploring dietary changes to alleviate symptoms. Despite setbacks, they remain committed to seeking treatment and improving their well-being while acknowledging the complexities involved. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Social Issues, Uncategorized, Wealthcareadvice, anthropology, autoethnography, care, choices, communication, community, content warning, diet, Doctors, drugs, EDS, ehlers danlos, Ehlers Danlos Syndrome, family, Free, health, healthcare, help, journal, labs, life, lifestyle, me too, Medicine, meds, Mental Health, moving target, mri, no paywalls, normal, outreach, personal truth, perspective, psychology, resources, results, self help, self improvement, sociology, struggle, survivor, symptoms, target, tests, therapy, trigger warning, Wealthcare, Zebra -
Zebra Files 15) Meaningless Answers
The author shares their ongoing struggle with persistent symptoms despite normal MRI results, ruling out MS and a CSF leak. They face severe pain, mobility issues, and insurance challenges for necessary physical therapy. A reduction in work hours raises financial concerns, while waiting for further medical evaluations adds to their anxiety. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Social Issues, Uncategorized, Wealthcareabnormal, advice, anthropology, autoethnography, communication, community, content warning, CSF Leak, EDS, ehlers danlos, Ehlers Danlos Syndrome, family, Free, health, healthcare, help, journal, labs, life, lifestyle, me too, Medicine, Mental Health, mri, multiple sclerosis, no paywalls, normal, outreach, personal truth, perspective, psychology, resources, self help, self improvement, sociology, struggle, survivor, testing, tests, therapy, trigger warning, Wealthcare, your labs are fine, Zebra -
Zebra Files 8) Life Keeps Lifing
The author reflects on their struggle with health issues amid family challenges, including upcoming MRIs to investigate a potential Cerebral Spinal Fluid Leak and Multiple Sclerosis. They confront overwhelming responsibilities, balancing personal needs, and the demands of caring for family members undergoing surgeries, all while managing their condition’s impact on daily life. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Social Issues, Uncategorized, Wealthcareadvice, appointments, communication, community, content warning, CSF Leak, EDS, Ehlers Danlos Syndrome, exhaustion, family, Free, health, help, journal, juggling, life, lifestyle, me too, mom, mri, ms, multiple sclerosis, no paywalls, no spoons, outreach, parenthood, personal truth, perspective, resources, self help, self improvement, spoon theory, spoons, struggle, surgery, survivor, tests, therapy, trigger warning, Zebra -
Zebra Files 7) Did Not See This Coming
The visit to Dr. Handjob revealed mixed news regarding health concerns. While he initially ruled out a CSF leak, he suggested other possible diagnoses: Ehlers Danlos Syndrome, Cerebral Spinal Fluid Leak, and Multiple Sclerosis. Diagnostic tests will clarify the situation, leaving uncertainty about the outcomes but maintaining a sense of humor. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Uncategorized, Wealthcareadvice, anthropology, autoethnography, communication, community, content warning, CSF Leak, diagnosis, EDS, ehlers danlos, family, Free, health, healthcare, help, Hypermobility, I am not okay, journal, life, me too, medical tests, Medicine, Mental Health, ms, multiple sclerosis, no paywalls, outreach, personal truth, perspective, psychology, resources, scary, self help, self improvement, sociology, strange, strange symptoms, struggle, survivor, symptoms, tests, therapy, trigger warning, Wealthcare, Zebra
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