exercise
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Daily Prompt – Walk or Run – 9.13.25
The author discusses the challenges of walking and running due to Ehlers Danlos Syndrome and L4 facet joint arthropathy, which cause joint pain and electrical shocks. Despite these difficulties and a spinal cord stimulator that often fails, they are gradually increasing their walking and stair climbing, focusing on recovery. Continue reading
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Zebra Files 38) Welcome Back
The author reflects on their holiday season, expressing hope and compassion despite challenges. They share their return from a break, discussing their health goals and experiences with physical therapy. A daily exercise regimen was developed, aiming to enhance mobility and strength, while navigating the unpredictability of living with Ehler’s Danlos syndrome. Continue reading
advice, communication, community, content warning, ehlers danlos, exercise, family, fitness, Free, health, healthcare, help, journal, life, me too, new years, no paywalls, outreach, personal truth, perspective, resources, self help, self improvement, strength-training, struggle, survivor, therapy, trigger warning, workout, Zebra -
Zebra Files 34) Hypermobility Workout
The post introduces a daily routine for managing hypermobility, particularly focusing on lower-body workouts available in two parts on YouTube. While not medical advice, the author hopes to raise awareness about the effort required for hypermobile individuals to function and encourages others to consider their own bodily needs. Continue reading
advice, communication, community, content warning, EDS, ehlers danlos, exercise, family, flexibility, Free, health, help, journal, life, lifestyle, loose, loose joints, me too, movement, no paywalls, outreach, personal truth, perspective, resources, self help, self improvement, stability, strength, struggle, survivor, therapy, trigger warning, workout, Zebra -
Zebra Files 31) Physical Therapy
The author shares their experiences with physical therapy, highlighting the challenges and discomfort encountered while addressing hip, back, and shoulder issues. Despite initial soreness and excitement about progress, they face setbacks including increased shoulder pain and joint issues. The journey emphasizes the complexity of rehabilitation and the importance of careful exercise management. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Social Issues, Uncategorized, Wealthcareadvice, anthropology, appointments, autoethnography, back, balance, communication, community, content warning, EDS, ehlers danlos, exercise, exercises, family, Free, frustrationi, global joint laxity, health, healthcare, help, hip, hips, hurt, Hypermobility, injury, joints, journal, laxity, life, lifestyle, me too, Mental Health, motion, muscle strength, muscles, no paywalls, outreach, overdoing it, pain, personal truth, perspective, physical therapy, psychology, pt, pushup, pushup plus, range of motion, resources, self help, self improvement, sessions, shoulder, shoulder pop, shoulder sprain, shoulder strain, small muscles, sociology, strain, strength, strength-training, struggle, surprise, survivor, therapy, trigger warning, Wealthcare, xray, Zebra -
Zebra Files 26) The Power of a Shower
The post discusses the author’s personal journey through caffeine withdrawal, emphasizing the importance of self-care. They describe acknowledging their struggles, countering cravings, and nurturing themselves with nutritious food and meaningful conversations. The acronym “Please Master” highlights self-care’s role in emotional regulation, fostering healthier patterns, and promoting overall well-being. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Uncategorized, Wealthcareadvice, anthropology, autoethnography, choices, communication, community, content warning, dbt, diet, exercise, family, food, Free, health, healthcare, help, hygiene, journal, life, lifestyle, me too, Mental Health, no paywalls, nutrition, outreach, personal truth, perspective, please master, psychology, resources, self care, self help, self improvement, selfcare, shower, skin, sociology, struggle, support, survivor, teeth, therapy, trigger warning, Wealthcare, Zebra -
Zebra Files 21) Prep Is a Four-Letter Word Meaning “Work”
The author shares their journey of implementing lifestyle and meal planning changes, acknowledging the challenges faced due to physical limitations. They emphasize the importance of preparation and adaptability while discussing their weekly meal plan, focusing on easy, repetitive recipes. The author hopes their experiences will inspire others without imposing judgments. Continue reading
Ehlers Danlos Syndrome, food addiction, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Uncategorized, Wealthcareadvice, anthropology, autoethnography, communication, community, content warning, diet, exercise, family, Free, health, healthcare, help, hypermobility syndrome, journal, life, me too, Mental Health, no paywalls, outreach, personal truth, perspective, psychology, resources, self help, self improvement, sociology, struggle, survivor, therapy, trigger warning, Wealthcare, Zebra
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