autoethnography
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Zebra Files 21) Prep Is a Four-Letter Word Meaning “Work”
The author shares their journey of implementing lifestyle and meal planning changes, acknowledging the challenges faced due to physical limitations. They emphasize the importance of preparation and adaptability while discussing their weekly meal plan, focusing on easy, repetitive recipes. The author hopes their experiences will inspire others without imposing judgments. Continue reading
Ehlers Danlos Syndrome, food addiction, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Uncategorized, Wealthcareadvice, anthropology, autoethnography, communication, community, content warning, diet, exercise, family, Free, health, healthcare, help, hypermobility syndrome, journal, life, me too, Mental Health, no paywalls, outreach, personal truth, perspective, psychology, resources, self help, self improvement, sociology, struggle, survivor, therapy, trigger warning, Wealthcare, Zebra -
30) Public Shaming
Public shaming in educational settings has severe detrimental effects on children’s identity and mental health. It fosters fear, resentment, and low self-esteem, and reinforces negative behaviors such as bullying. A nurturing environment, free from humiliation, is critical for fostering growth, vulnerability, and overall wellbeing in children facing diverse challenges. Continue reading
Conformity and Control, cult of the ego, cycle breaking, Erasing The Silence, grooming, Health and Healing, Social Issues, theory, Uncategorizedadministration, adolescence, advice, anthropology, autoethnography, brene brown, bullying, childhood, columbine, communication, community, content warning, counselors, cult of the ego, damage, damage control, family, Free, happy child, health, help, human improvement project, journal, learning, life, me too, Mental Health, no more, no paywalls, not on my watch, outreach, parenting, personal truth, perspective, principal, psychology, public school, public shaming, resources, safety, school, school shooter, self help, self improvement, shame, shame resilience, social science, sociology, stand with emma, struggle, super intendent, survivor, teachers, therapy, toxicity, toxicity toolkit, trigger warning, vulnerability, Wellness -
Zebra Files 18) Understanding Where I’m Coming From
The author shares poetry reflecting on personal health struggles, including mental health, ADHD, and obesity. The poem describes a transformative experience with mental anguish, contemplating death before choosing life. The semicolon symbolizes resilience, representing a continuation of the author’s story despite hardships. The work emphasizes overcoming despair and embracing a renewed existence. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Social Issues, Uncategorized, Wealthcareadvice, anthropology, autoethnography, communication, community, content warning, cry for help, family, Free, health, healthcare, help, journal, life, lifestyle, me too, Medicine, Mental Health, no paywalls, outreach, personal truth, perspective, Poetry, protyusagendher, psychology, resources, self help, self improvement, semicolon, sociology, struggle, suicidality, suicide, survivor, therapy, trapped, trigger warning, Wealthcare -
29) Sisters Part Two
The author reflects on the challenging experience of caring for younger sisters, feeling the absence of their mother. Bath time transforms from joy to a struggle, marked by fear and harsh discipline influenced by the mother’s expectations. The narrator grapples with feelings of inadequacy and learns harmful lessons on parenting. Continue reading
Conformity and Control, cult of the ego, cycle breaking, Erasing The Silence, grooming, Social Issues, Uncategorizedabuse, advice, anthropology, autoethnography, bath, childcare, communication, community, content warning, cult of the ego, cycle, cycle breaker, cycles of abuse, dysfunction, dysfunctional family, dysregulation, family, family scapegoat syndrome, Free, grooming, growing up, health, help, journal, life, me too, mom, narcissist, no paywalls, outreach, parentified, parentified child, personal truth, perspective, psychology, resources, self help, self improvement, sisters, social science, sociology, spanking, struggle, survivor, teens, therapy, training, trigger warning, water -
Zebra Files 17) Trying To Hit A Moving Target
The writer compares managing health challenges to eating a whole elephant, emphasizing ongoing struggles with pain, medical tests, and difficult lifestyle choices. They face guilt over limitations and are exploring dietary changes to alleviate symptoms. Despite setbacks, they remain committed to seeking treatment and improving their well-being while acknowledging the complexities involved. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Social Issues, Uncategorized, Wealthcareadvice, anthropology, autoethnography, care, choices, communication, community, content warning, diet, Doctors, drugs, EDS, ehlers danlos, Ehlers Danlos Syndrome, family, Free, health, healthcare, help, journal, labs, life, lifestyle, me too, Medicine, meds, Mental Health, moving target, mri, no paywalls, normal, outreach, personal truth, perspective, psychology, resources, results, self help, self improvement, sociology, struggle, survivor, symptoms, target, tests, therapy, trigger warning, Wealthcare, Zebra -
28) Sisters
The author reflects on their complex relationships with younger sisters, shaped significantly by the loss of their father. Sister A, often feeling neglected, developed a distrustful personality, while Sister B became the author’s cherished companion. The narrative explores family dynamics, caregiving responsibilities, and the lasting impact of grief on sibling connections. Continue reading
Conformity and Control, cult of the ego, cycle breaking, Erasing The Silence, grooming, Social Issues, Uncategorizedadvice, anthropology, autoethnography, babies, child rearing, communication, community, content warning, depression, development, family, Free, grooming, health, help, journal, life, me too, Mental Health, milestones, naptime, no paywalls, outreach, personal truth, perspective, preteen, psychology, recovery, resources, self help, self improvement, sib, sisters, sociology, struggle, suicide, survivor, teenager, therapy, toddler, toddlers, training, trauma, trigger warning -
Zebra Files 16) While We Wait
The speaker is facing a month-long wait for a neurologist referral and additional delays for a geneticist’s diagnosis. Pending treatments include physical therapy, acupuncture, therapy, massage, chiropractic care, and potential pain injections. They also share a link to an external healing resource. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Revictimization, Social Issues, Uncategorized, Wealthcareadvice, anthropology, asking for help, Autism, autoethnography, communication, community, content warning, diagnosed, family, Free, health, healthcare, help, how to, journal, life, me too, Mental Health, neurodivergent, no paywalls, outreach, pending, personal truth, perspective, Poetry, psychology, purgatory, resources, self help, self improvement, sociology, struggle, survivor, ted talk, therapy, trigger warning, undiagnosed, waiting, Wealthcare -
27) Autism
The author reflects on their journey with autism and ADHD, emphasizing the struggles of misdiagnosis and societal expectations. They recount experiences of isolation, misunderstanding, and the challenges of conformity in a rigid educational system. The narrative highlights the need for better recognition of autism, particularly among girls and non-binary individuals. Continue reading
Conformity and Control, cult of the ego, cycle breaking, Erasing The Silence, grooming, Health and Healing, Social Issues, Uncategorizedabuse, adhd, advice, anthropology, assessment, Autism, autistic, autoethnography, communication, community, content warning, diagnosis, family, Free, gender, health, help, journal, life, lifestyle, me too, no paywalls, outreach, personal truth, perspective, psychology, punishment, resources, rfk, schizophrenia, self diagnosed, self help, self improvement, sociology, struggle, survivor, therapy, trigger warning, undiagnosed, vaccine -
Zebra Files 15) Meaningless Answers
The author shares their ongoing struggle with persistent symptoms despite normal MRI results, ruling out MS and a CSF leak. They face severe pain, mobility issues, and insurance challenges for necessary physical therapy. A reduction in work hours raises financial concerns, while waiting for further medical evaluations adds to their anxiety. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Social Issues, Uncategorized, Wealthcareabnormal, advice, anthropology, autoethnography, communication, community, content warning, CSF Leak, EDS, ehlers danlos, Ehlers Danlos Syndrome, family, Free, health, healthcare, help, journal, labs, life, lifestyle, me too, Medicine, Mental Health, mri, multiple sclerosis, no paywalls, normal, outreach, personal truth, perspective, psychology, resources, self help, self improvement, sociology, struggle, survivor, testing, tests, therapy, trigger warning, Wealthcare, your labs are fine, Zebra -
26) Adolescent Sexuality
The author reflects on adolescence. Continue reading
cult of the ego, cycle breaking, Erasing The Silence, grooming, Poetry, Social Issues, Uncategorizedadolescence, advice, anthropology, autoethnography, autonomy, becoming, bisexual, bonding, communication, community, content warning, dare, experimentation, exploration, family, Free, gender, gender roles, grooming, health, help, journal, life, me too, no paywalls, nonbinary, outreach, pansexual, personal truth, perspective, psychology, resources, self help, self improvement, sexuality, sociology, struggle, survivor, therapy, trans, transgender, trauma, traumabonding, trigger warning, undesirable, unlovable -
Zebra Files 14) Schrodinger’s Brain
The author explores the complex nature of illness and self-doubt through the metaphor of Schrodinger’s brain, likening their symptoms to being simultaneously real and unreal. This internal struggle involves battling a critical inner voice, “Joyce,” and the challenge of seeking validation amidst fluctuating health. The journey highlights the quest for real answers and relief. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Social Issues, Uncategorized, Wealthcareadvice, anthropology, autoethnography, body, communication, community, content warning, EDS, Ehlers Danlos Syndrome, family, Free, headaches, health, healthcare, help, journal, life, lifestyle, me too, Medical, Medicine, Mental Health, multiple sclerosis, neuropathy, no paywalls, outreach, pain, personal truth, perspective, psychology, regimen, resources, schrodinger, self help, self improvement, sociology, struggle, survivor, symptoms, therapy, trigger warning, Wealthcare, Zebra -
25) My Gender
Protyus A. Gendher’s poem “My Gender” explores the complexities of gender identity through vivid imagery and personal experiences. It reflects on themes of personal struggle, societal expectations, and emotional growth. Gendher illustrates gender as a multifaceted journey filled with chaos, joy, trauma, and resilience, emphasizing self-acceptance and individuality. Continue reading
Conformity and Control, cult of the ego, cycle breaking, Erasing The Silence, Poetry, Social Issues, Uncategorizedacceptance, advice, authenticity, autoethnography, autonomy, becoming, belonging, coming of age, communication, community, content warning, expression, family, Free, gender, gender roles, genuine, health, help, human, humanness, identity, journal, lgbt, life, me too, no paywalls, outreach, personal truth, perspective, Poetry, raw, resources, role behavior, self, self acceptance, self care, self help, self improvement, self love, self worth, struggle, survivor, therapy, trans, trans rights, trigger warning, truth, understanding, vulnerable -
24) It’s Ok
The content explores the complexities of grief through a reflective lens. It emphasizes that it’s acceptable to experience various emotions during mourning, highlighting the notion that one can feel both okay and not okay simultaneously. The author encourages self-acceptance and underscores the importance of personal healing journeys. Continue reading
advice, anthropology, authenticity, autoethnography, communication, community, connection, content warning, family, Free, grief, grieving, healing, health, help, its ok, journal, life, losing people, loss, loved ones, me too, Mental Health, moving on, no paywalls, outreach, personal truth, perspective, poem, Poetry, psychology, recovery, resources, script, script theory, self help, self improvement, struggle, suicide, survivor, therapy, trauma, trigger warning -
Zebra Files 13) Why Blog About It?
The author blogs about their medical journey for three main reasons: to process and analyze experiences, to create a searchable record of symptoms and illness progression, and to emphasize the importance of representation and visibility for shared experiences. Blogging fosters community and encourages open conversations about health struggles. Continue reading
cycle breaking, Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Social Issues, Uncategorized, Wealthcareadvice, anthropology, autoethnography, blog, communication, community, content warning, conversation, EDS, family, Free, health, healthcare, help, hoofbeats, Invisible, journal, life, lifestyle, me too, Medicine, Mental Health, narrative, no paywalls, outreach, personal truth, perspective, protyusagendher, psychology, records, representation, resources, script theory, self help, self improvement, social change, sociology, speaking up, struggle, survivor, therapy, trigger warning, visibility, Wealthcare, Zebra -
Zebra Files 12) Bracing for the Week Ahead
The author expresses anxiety about upcoming changes at work, including requesting accommodations while facing performance evaluations. They feel disposable and fear job insecurity. Additionally, they are frustrated with their medical care regarding scoliosis and the need for imaging. Amid personal challenges, they strive to manage their responsibilities while seeking answers about their health. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Social Issues, Uncategorized, Wealthcareadvice, anthropology, autoethnography, burnout, communication, community, content warning, CSF Leak, desperation, Ehlers Danlos Syndrome, family, fatigue, Free, health, healthcare, help, journal, life, me too, Medicine, Mental Health, mental load, multiple sclerosis, no paywalls, outreach, overtaxed, personal truth, perspective, psychology, resources, self help, self improvement, sociology, spoons, struggle, survivor, therapy, trigger warning, Wealthcare, Zebra
Recent Posts
- 27) Autism
The author reflects on their journey with autism and ADHD, emphasizing the struggles of misdiagnosis and societal expectations. They recount experiences of isolation, misunderstanding, and the challenges of conformity in a rigid educational system. The narrative highlights the need for better recognition of autism, particularly among girls and non-binary individuals. - Relational Field Theory -Ritual as Functional Architecture
The author reinterprets rituals as functional architectures rather than symbolic acts, identifying them as mechanisms for state changes in human interactions. By outlining the essential “primitives” of relational intelligence—honesty, curiosity, coherence, willingness, meaning-making, field-awareness, and self-love—the text bridges rituals with therapy, highlighting their shared structural elements. - Relational Field Theory – The Ritual We Didn’t Know We Were Doing
Relational Field Theory The Ritual We Didn’t Know We Were Doing Why Humans Need Rituals, and Why I’m Temporarily Using… Read more: Relational Field Theory – The Ritual We Didn’t Know We Were Doing - Relational Field Theory – Ritual
This chapter explores the essential role of rituals in human connections, highlighting how they establish shared fields for recognition and cooperation. It outlines the fundamental relational gestures that enhance interactions and underscores that self-love is the foundation for these exchanges, allowing individuals to navigate relationships without trust issues. - Relational Field Theory – Convos with Copilot
The content emphasizes the concept of self-love as a deep, inherent recognition rather than a learned behavior. It suggests that true self-love manifests in understanding one’s consistent support throughout life, even in challenging times. The realization of this love allows individuals to experience coherence and alignment in their lives, revealing their intrinsic wisdom. - Relational Field Theory – When the Field Sorts the Truth for You
The blog post reflects on the author’s experience of facing rejection from Amazon, initially triggering self-doubt. However, through honesty and curiosity, the author realizes the rejection is not personal but a systemic issue. This insight leads to a deeper understanding and acceptance, highlighting the importance of perspective and personal growth. - Relational Field Theory – Power
Relational Field Theory emphasizes the importance of choosing what influences our sense of self and creativity. The author reflects on a rejection by Amazon, realizing that external corporations shouldn’t dictate personal worth. By recognizing this, one regains clarity and agency, allowing them to select meaningful connections and structures in their creative journey. - Relational Field Theory – Holding the Field
The post explores the concept of Relational Field Theory, emphasizing creation as a process rooted in presence and coherence. It highlights that creative growth stems from maintaining a relational stance amid mundane challenges, rather than seeking domination or frustration. Presence in such moments nurtures ecosystems, even within limiting circumstances. - Relational Field Theory – Creating Through Relation
The blog post discusses a shift in the understanding of creativity from a violent, extractive process to one rooted in relational interaction and authenticity. It emphasizes the importance of creating in connection with oneself and others, where each action nurtures the ecosystem of creativity, fostering a self-sustaining, harmonious existence. - 58) Third Wheel
This post recounts the amusing experience of a mischievous group of students, which leads to an unexpected reunion between Mr. E, and a former crush named Reticence. The narrator plays matchmaker between them, facilitating a nostalgic date at Dairy Queen, which sparks old feelings leading to a sweet, albeit brief, romance. - Relational Field Theory – From Plurallile to Witch — The Lineage of Many‑in‑Coherence
The passage discusses the concept of “plurallility,” describing individuals who possess a coherent, multi-faceted consciousness that transcends traditional hierarchies. These individuals, often labeled as “witches” or “troublemakers” by institutions that resist coherence, embody a relational power that disrupts stagnant structures. Their presence fosters truth and transparency, challenging societal norms. - Relational Field Theory – BTS
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Relational Field Theory emphasizes a transformative approach for autistic and neurodivergent individuals, replacing distorted communication tools with a ceremonial talking stick that fosters authenticity. This new “mic” ensures attention, truth, and coherence, inviting individuals to speak without masks or filters, asserting their presence and voice within the conversation. - Relational Field Theory – Autistic People are Friggin AWESOME at Relationships
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