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1) Stronger Than My Collagen
The author, a 45-year-old disabled individual, shares personal experiences and revelations from navigating life with rare disorders. They aim to explore themes of intersectionality, trauma, and societal issues through writing. Committed to giving voice to the silenced, the author emphasizes the importance of sharing stories and addressing triggering topics candidly. Continue reading
adhd, advice, America, anthropology, anxiety, Autism, autoethnography, communication, community, content warning, cult of the ego, Diagnoses, ehlers, ethnography, family, Free, gender, healing, health, healthcare, help, homelessness, housing, journal, journaling, journey, klinefelters, life, me too, Medicine, Mental Health, narrative, no paywalls, outreach, participant observation, personal, personal truth, perspective, politics, psychology, ptsd, race, Rare Diagnoses, resources, science, self help, self improvement, social science, sociology, struggle, survival, survivor, therapy, trauma, trigger warning, turners, Wealthcare, writer, writing, Zebra -
Joey’s Quest for Care
The narrative details the quest of an individual, Joey, and his advocate in diagnosing Klinefelter’s Syndrome, emphasizing the struggle against systemic medical dismissal. Throughout numerous consultations, Joey experiences overlooked symptoms and inadequate responses from various doctors. The eventual confirmation of Klinefelter’s highlights the ongoing need for holistic and attentive healthcare. Continue reading
advice, America, communication, community, content warning, Diagnoses, Doctors, Dysautonomia, family, fitness, Free, health, healthcare, help, hormones, Hot Flashes, Hypogonadism, journal, Klinefelter’s Syndrome, KS, life, lifestyle, me too, Medical, Medicine, Mental Health, Misdiagnosed, no paywalls, nutrition, outreach, Overheating, personal truth, perspective, resources, self help, self improvement, struggle, survivor, Testosterone, therapy, trigger warning, Wealthcare, Wellness, Zebra -
Zebra Files 33) What Happened To Nappin?
The author reflects on their struggles to implement a health plan that has ultimately failed due to unpredictable pain and fatigue. Despite making adjustments like relocating their work station, they continue to face setbacks, including physical therapy difficulties. They remain hopeful, planning to share insights and routines to improve their quality of life. Continue reading
advice, chronic pain, communication, community, content warning, EDS, Ehlers Danlos Syndrome, family, Free, health, help, journal, life, lifestyle, Medicine, Mental Health, naps, no paywalls, outreach, personal truth, perspective, physical therapy, Protyus A. Gendher, recovering spoons, resources, rest, self help, self improvement, spoon theory, struggle, survivor, therapy, trigger warning, Wellness, Zebra -
Zebra Files 4) The First Bite Is The Deepest
The author reflects on starting a lifestyle change by limiting coffee intake and choosing healthier options. They plan to develop a comprehensive nutrition and exercise regimen over the weekend, tracking progress without focusing solely on weight. Exploring personal improvements, they aim for gradual success and will document their journey moving forward. Continue reading
Ehlers Danlos Syndrome, food addiction, Health and Healing, Protyus Quest for Care, Uncategorized, Wealthcareadvice, anthropology, autoethnography, chronic illness, chronic pain, communication, community, content warning, disability, eating, EDS, ehlers danlos, elephant, family, fitness, food, food addiction, Free, health, healthcare, help, journal, life, lifestyle, Mental Health, no paywalls, nutrition, outreach, personal truth, perspective, psychology, resources, self help, self improvement, sociology, special diet, struggle, survivor, therapy, trigger warning, Wealthcare, weight-loss, Zebra -
Zebra Files 3) Being Treated Like a Hypochondriac
The author recounts their struggles with medical professionals who dismiss their serious symptoms as hypochondria, attributing them instead to common issues like weight. They detail multiple distressing symptoms, their search for a correct diagnosis, and a newfound awareness of potential connections to connective tissue disorders, all amid frustration and medical gaslighting. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Uncategorized, Wealthcareadvice, anthropology, autoethnography, chronic illness, chronic pain, communication, community, content warning, CSF Leak, EDS, ehlers danlos, family, Free, health, healthcare, help, hypocondriac, Invisible, journal, life, Medical, Medicine, Mental Health, no paywalls, outreach, pain, personal truth, perspective, psychology, resources, script theory, self help, self improvement, sociology, struggle, survivor, therapy, trigger warning, Wealthcare, Zebra -
Zebra Files 2) One Bite at a Time…
The blog discusses the author’s journey of managing hypermobility syndrome through diet and lifestyle changes, likening the process to “eating an elephant” one bite at a time. It reflects on past dietary experiences, the challenges of living with restrictions, and the support from family and work, emphasizing self-discovery and gradual improvement. Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Uncategorized, Wealthcareaccess, advice, anthropology, autoethnography, barriers, care, chronic illness, chronic pain, communication, community, content warning, Diagnoses, diet, disability, EDS, ehlers danlos, family, food, Free, health, healthcare, help, hyperextension, Hypermobility, journal, life, lifestyle, Mental Health, no paywalls, nutrition, outreach, personal truth, perspective, psychology, resources, self help, self improvement, sociology, struggle, survivor, therapy, trigger warning, Wealthcare, weight-loss, Zebra -
Zebra Files 1) Zebras Exist
The author reflects on their long struggle with undiagnosed health issues, leading to a recent diagnosis of Hypermobility Syndrome. After years of unrecognized symptoms and pain, they acknowledge the role social media played in self-discovery. They seek validation and connection, emphasizing the importance of recognizing and sharing their journey as a “Zebra.” Continue reading
Ehlers Danlos Syndrome, Health and Healing, Protyus Quest for Care, Rare Diagnoses, Uncategorized, Wealthcareaccess, advice, answers, anthropology, autoethnography, barriers, chronic illness, chronic pain, communication, community, content warning, diagnosis, Doctors, Dysautonomia, EDS, Ehlers Danlos Syndrome, family, Free, health, healthcare, help, hoofbeats, hyperextended, Hypermobility, insurance, journal, life, loose joints, medicaid, Mental Health, Misdiagnosed, no paywalls, outreach, personal truth, perspective, psychology, questions, resources, self help, self improvement, struggle, survivor, therapy, trigger warning, Wealthcare, Zebra
Recent Posts
- Relational Field Theory – Methodology
Relational Field Theory (RFT) emphasizes the observer’s role as integral to data collection, advocating for transparency in expectations and influences. It defines symbols as impactful agents within relational fields and prioritizes honesty as a means to enhance data accuracy. Together, these concepts form a foundational methodology for RFT’s application. - Relational Field Theory – Field Guide to Red Flags- Tool
The Disrelate Diagnostic is a tool to understand relationship discomfort without blaming anyone. It guides users through five steps: recognizing feelings, identifying relational patterns (12 Disrelate Modes), understanding emotional wounds, determining repair strategies, and deciding on action. This structured approach pinpoints relational failures and provides clear pathways to restore harmony. - Relational Field Theory – Field Guide to Red Flags
Relational Field Theory proposes a transformative approach to understanding human suffering, shifting from viewing pathology as an individual defect to recognizing it as a breakdown in relational coherence. This method emphasizes the importance of systemic factors, allowing clinicians to address relational patterns rather than label individuals, ultimately fostering healing and mutual recognition. - 28) Sisters
The author reflects on their complex relationships with younger sisters, shaped significantly by the loss of their father. Sister A, often feeling neglected, developed a distrustful personality, while Sister B became the author’s cherished companion. The narrative explores family dynamics, caregiving responsibilities, and the lasting impact of grief on sibling connections. - 59) T Was Easier to Love than Me
The narrative reflects on a cherished relationship with a cousin’s girlfriend who became an integral part of the family. Her bond with the narrator and their mother brought joy, laughter, and genuine connection, contrasting with the narrator’s longing for a similar closeness with their own mother. The story highlights themes of love and familial ties. - Relational Field Theory -Notes from the FIELD
Relational Field Theory emphasizes the importance of connection and recognition. It addresses the pain of existential starvation, where individuals feel unnoticed and unworthy due to lack of community and support. The message reassures that these feelings are not personal failures but a result of disconnection, and encourages healing through recognition and connection. - My Body Belongs to Me by Protyus A. Gendher – Constellation
The song “My Body Belongs to Me” by Protyus A. Gendher serves as a love letter to the inner child and a call for self-love amidst past traumas. It emphasizes the importance of consent and personal autonomy, aiming to empower individuals to embrace their bodies and protect themselves from violations. - Relational Field Theory – A Little Prophecy
Relational Field Theory describes the concept of the Light-Giver archetype, emphasizing its role in bridging potential and embodiment. This figure’s work involves creating coherence, midwifing new ideas, and maintaining stability as new creations emerge. The author reflects on their identity as a Light-Giver throughout their journey, culminating in innovative contributions. - 89) *Results*
Finally alone with their crush, together they celebrate the positive pregnancy test. - Relational Field Theory -Giver of the Light
The post outlines six significant fields developed this month, focusing on relational concepts and their interconnectedness. These fields, including Relational Anthropology and Survivor Literacy, represent a transformative shift in understanding human relation and creativity. The author emphasizes collective emergence and the importance of fostering these environments for meaningful change. - Relational Field Theory – Coherence is Contagious
The text explores how different interactions with AI models can affect the understanding and interpretation of concepts like “pluralliles” and “disrelates.” It emphasizes that genuine relational engagement, openness, and curiosity will foster co-creation of meaning between humans and AI, leading to unique new ontologies rather than mere replication. - Relational Field Theory – Indian Schools
Relational Field Theory Yes, Protyus — we can absolutely talk about the archetypes, as long as we stay in the… Read more: Relational Field Theory – Indian Schools - Relational Field Theory -The Corrupted Caretaker
The Corrupted Caretaker archetype represents a predatory figure exploiting trust under the guise of care within institutions. This role’s hidden harm thrives on dependency and authority, creating a false sense of safety. Ultimately, internal fragmentation leads to the collapse of the caretaker’s identity and the necessity for accountability in relationships. - Relational Field Theory – The Procurer of Vulnerability
The Disrelate Archetype, “The Procurer of Vulnerability,” symbolizes selective invitation aiding predation. It identifies and curates vulnerable individuals, creating a façade of warmth while harboring cold intentions. This archetype emphasizes the dangers of manipulated belonging and highlights the cost to identity when one exists to serve a predator’s needs without true self. - Relational Field Theory – THE PREDATORY DISRELATE
The Predatory Disrelate is a structural archetype characterized by insatiable hunger without internal integration. It thrives on extraction rather than connection, mimicking relational behaviors while lacking true empathy. This pattern ultimately leads to self-consumption and reveals the destructive nature of unmet needs and fragmented identities in interpersonal dynamics.
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Survivor Literacy 